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  1. #1
    Registered User. Otter's Avatar

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    How to get a doctor to prescribe Baclofen.

    Well, I mentioned Baclofen and autism to my doctor and he was very interested so I sent him a link.

    But...what bothers me is that when you talk about alcoholism doctors just go blank. You can suggest they look at the posts in these threads and you get the impression they think you are a head case.

    I have read posts here from people who have taken "The End of My Addiction" to their doctor. The only professional I gave it to to read handed it back saying he had "issues" with it.

    The issue I have is that you would have to read the whole thing to get to the point where he describes how Baclofen works. Even then you have to analyse the text to find out what his dosages are. Why did he not publish some handy guide as to how to dose on Baclofen? And he never has. When we started using it I was instantly impressed by the vast quantity of the drug I would either have to acquire or have prescribed.

    How do you go into a doctor and say, "Can you give me a prescription starting at 5 mg a day for several days, I don't know how long, and then 10 mg a day for several day, don't know how long, and then in increasing amount up to a level where I am cured of alcohol which might mean taking three times the legal limit of the stuff for I don't know how long and then tapering down, or maybe not, I don't know and staying on that level for the rest of my life." Or you could just ask him for a couple of kilos of it in a brown bag!


    Anyway, how do doctors get to know how to prescribe Baclofen if they are skeptical of the idea and have no access to anything which would guide then as to how to prescribe?

    I had thought that threatening doctors with lawsuits was the answer but maybe that is using a hammer to crack a peanut. Surely most doctors would realize that it is ethically wrong of them to allow patients to self prescribe. I am sure if you told a doctor that you had found that Baclofen had worked for you and that you were abstinent and had been for some time they would be duty bound to take over supervision of your treatment. I cannot see it any other way from a legal and professional conduct perspective. Certainly combining that with reference to the literature on Baclofen surely would make them realize that they were on thin ice if they refused.

    Of course, that still does not answer the question of how to bring a doctor up to speed in terms of usage of Baclofen. There is a real shortage, apart from on this forum, of information about using Baclofen but what doctor is going to rely on the disparate postings on an internet site from people with no medical experience. I know Phillip Thomas has now written a Baclofen Handbook and it seems to me that whatever you think of him and whatever has befallen him in his profession, which is no different to what happened to Olivier, the next logical step is for doctors to be "educated" on the use of Baclofen and I believe the Handbook is the only book out there at the moment. Maybe if anyone has bought the book they could comment on whether it is useful and might be something which you should take to your doctor to show him the way forward. Personally, I don't see what alternative there is when a doctor just turns to you, as ours did, and said she was not an expert in alcoholism. Surely it is a doctor's duty, if they have a patient with an illness to study up on it with whatever information they can find. So why not make it easy for them and put them in an uncomfortable position so they cannot weasel out of it.

    Well, that was my thought for the day. Oh, and can we leave personalities out of it because I really think it is important to find a way to persuade doctors to prescribe. Ours is still refusing to go above 80mg a day. Any suggestions are graciously received in the spirit of this forum.

    Best wishes

  2. #2
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    How to get a doctor to prescribe Baclofen.

    Otter,
    If I were a doc and a patient told me to prescribe X medicine or face a lawsuit I would show them the door.
    Sunny

  3. #3
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    How to get a doctor to prescribe Baclofen.

    Just thought I would say that I shall be returning to England for the first tome in 5 years and there I will have access to credit cards, reliable post and therefore shall purchase a copy of Dr Phill's handbook.

  4. #4
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    How to get a doctor to prescribe Baclofen.

    Otter;1023013 wrote: Maybe if anyone has bought the book they could comment on whether it is useful and might be something which you should take to your doctor to show him the way forward.
    I've edited my post and redacted my original harsh review.

    Yeah, I've purchased it and read it. I think that it's worth about $5 not $30 and I didn't find a whole lot of useful info in there for me (much of the info is vague and speculative in a very unscientific way, and none of it is new at all). It's self-published through lulu.com, a website that lets anyone publish a manuscript that you can update in real time. Books are manufactured one at a time when an order is placed so you might have to wait a bit to get one and the print quality is a lot like a laser printer. Lulu offers more affordable .pdf downloads but Phill hasn't made his book available as one. And it definitely will not get you baclofen from a doctor that wouldn't already prescribe it to you (that's my opinion and I'm not licensed to practice medicine - I will maintain, however, that Phill isn't either, though there is no way for someone buying this book to know that).

  5. #5
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    How to get a doctor to prescribe Baclofen.

    Sunnyvalenting;1023220 wrote: Otter,
    If I were a doc and a patient told me to prescribe X medicine or face a lawsuit I would show them the door.
    Sunny
    I must agree that threatening to sue doctors for not prescribing baclofen is just not the way to go. As an addiction specialist said to me when I asked to follow Dr Ameisen's method, I was expecting him to prescribe baclofen "for an off-label use at off-label doses". However I do understand the frustration of someone who honestly wishes to use this idea to save their lives or someone else's life, as I am currently trying to get two of my severely alcoholic friends to try it via online ordering and I know how much easier and probably safer it would be under a doctor's supervision.

  6. #6
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    How to get a doctor to prescribe Baclofen.

    Maybe I wont buy the book. Bit of a moot point at this stage anyway.

  7. #7
    Registered User. bachope's Avatar

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    How to get a doctor to prescribe Baclofen.

    I should just like to assure you that if you go to your GP armed with as much information as you can about Baclofen and support your case with the costs of it v Antibuse & Camprel you might just be as fortunate as my loved one was in getting it prescribed.

    Antabuse = ?25.00 - pack of 50 tabs
    Campral = ?24.00 - pack of 168 tabs
    Baclofen = ?1.20 - pack of 84 tabs

    In order to get the prescription raised to higher doses that 30mg per day we took along further info Dr O Aimesens book, and a blog written by Chris Eagles printed off so the GP could see that it is being prescribed in the UK, and that it does work if the right doses are given and managed.

    In addition to this we have recently stumbled upon the B4a Baclofen Handbook, (available via Lulu.com) this was my best investment to date and we have found to be 'priceless' in the management of Baclofen dosages, side effects and outcomes. The book is written in laymen terms and is a must have if taking Baclofen for addiction, We are having a review meeting with the GP to discuss 60mg. 20mg, 60mg doses per day, (prescribed off licence as not approved by NICE) we will be sure to take the handbook with us in order for the GP to have a read in the hope that they may consider Baclofen for others wanting to overcome this illness. The book refers to the AAA >> Anxiety + Alcohol = Addiction which is what we want all the GP's to understand.

    My loved one is living proof that Baclofen works, and i hastened to contact Dr Phil Thomas to thank him for writing the handbook, he has shown great interest in our story and is very helpful & supportive in dealing with this, just like Dr A, he has come out the other side of this illness due to Baclofen, and a good contact to have should you too need any help.

    Wishing you good luck in your plight to convince your GP to raise the dose.

  8. #8
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    How to get a doctor to prescribe Baclofen.

    There are probably other doctors besides Levin who will prescribe this. I know the doctor in Atlanta prescribed it for me up to 120 mg/day. Since I didn't need more than that I didn't test whether he would have given more if it had been needed. I think a wonderful resource would be a list of doctors in various places who will prescribe it.
    Sunny

  9. #9
    Registered User. bachope's Avatar

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    How to get a doctor to prescribe Baclofen.

    Hi Terry K, i don't get the impression that either of the DR's (Dr A or Dr Phil) profess to be licensed to practice medicine any longer, but evidently they were before their illness, therefore it is their understanding of medicine and taking the time to write the material to help others that they should be given credit for, it certainly helped my loved one to get Baclofen through the 'right' channel, and improved her life, which also improved mine so i give great thanks to these gents for their research, knowledge and for sharing it with us. Irrespective of how or where it is published!

  10. #10
    Registered User. bachope's Avatar

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    How to get a doctor to prescribe Baclofen.

    Suggestion: If you belong to a GP practice where there is more than one GP, chose one to see, he/she who will be more understanding and brave enough to try Baclofen for this illness.

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