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  1. #1
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    Baclofen advice required

    Hi all, new here and getting used to how this forum works so please bear with me.
    I started Baclofen a couple of months ago and have been steadily building up the dose. I'm taking 30mg 4x a day for a total of 120mg p/day. I've yet to hit this 'switch' I keep hearing of, or see any drastic reduction in my anxiety (which was what drove me to drink) but I know many people have to go much higher before they find the switch. Problem is, the side effects are kicking my arse, the dizziness I can deal with but when trying to sleep Iget tingling, electrical feelings predominantly in my arms which drive one insane. So to sum up as a result I'm wavering. I want to keep up this treatment as I feels like my last hope. Any advice, tips or encouragement appreciated. Thanks.

  2. #2
    Registered User. Ne/Neva Eva's Avatar

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    Hi Danathos. Welcome to the forum.

    I didn't start to see any real difference or improvement until I reached about 140mg of baclofen. Then the higher I went, the less I drank, except on some occasions when I would, for whatever reason, drink like a fish for a day or two.

    Drinking probably makes the side effects worse, btw. I wouldn't swear to that, it's not official or anything, but it makes sense. Drinking makes everything worse, in general! Ha!

    It took a while, but I actually got used to the zaps in my arms, then that side effect went away. It still occasionally happens, but I don't find it alarming anymore. The SEs are dose dependent, so going up or down a little bit may change how you're reacting to it.

    Are you taking the same amount on a regular schedule?

    It was absolutely worth it to me to stick it out, and I had a pretty harrowing time of it in the beginning. Still, it's worth almost anything to be free of the need for booze. At least to me.

    Hang in there!

  3. #3
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    Thanks ne, I generally take the first does around 9am then the next every 4-6 hours after and so on. I do think the booze may well make it worse, and it tends to be less difficult the more exhausted I am. Eg after no sleep and a day at university the other week I slept like a log after 2 bOttles of wine . thank you your post encouraged me to remain at 120mg rather than reduce. I'm also receiving 60mg/ day of the bac for free as my docs are trying it for alcohol too but won't try it in the big doses we seem to need. I also spoke to some guy called Phillip Thomas who claims to be a baclofen expert, however I didn't trust him. He claimed he knew Olivier Ameisen and that Ameisen smoked like a chimney, contributing to his death, however there are entire paragraphs in the end of my addiction where Ameisen talks about how odd it was that as an alcoholic he never smokedů

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  5. #4
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    Hi Danathos. Welcome! I have the zaps on occasion, but like Ne, they mostly go away once I stay at that dose for a while. Sometimes they come back if I go up or down in dosage. If an SE is really annoying, you can try going up or down just 10mg. That can shift everything in terms of SEs. It just might take a few days to feel the effect.

    I also agree that drinking makes SEs worse. Do you find you're drinking less on Bac? What have you noticed in terms of changes?

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  7. #5
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    Hi dun,
    I tried dropping the dosage by 30 mg yesterday but it didn't really make too much difference come bed time. I'm hoping that this stuff will eventually just pass

    I havent noticed massive changes myself, though my GF claims i'm better than I was before I started taking it. Though I tend to find it a *little* easier to get out and about than I did before starting it. I have noticed that if I take one when I've just woke up if I try dozing again sometimes it feels a bit like i've taken a vallium but mostly the feelings at the moment are subtle

  8. #6
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    Ne may I ask about your experience with Phillip Thomas? I am rather suspicious of him and I've not seen much on here (I found him before coming here) to ease my suspicions of him.

  9. #7
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    hi Danathos,

    I got up to 300mg to reach indifference, it went like this for me, 0-100mg very little side effects, 100-200mg somnolence insomnia, 200-300mg was the same but worse.

    I didnt actually start drinking less until near the switch, i actually drank more initially, this is common because people will try to drink more to achieve the euphoria baclofen takes away.

    after being on 300mg for 2-3 months, side effects went away almost completely, im on 225mg at the moment. looking to go to 200mg soon

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  11. #8
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    it's bloody hard isn't it? holding to faith that it's going to work when you're working up to high doses but it still doesnt seem to be doing it yet?

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  13. #9
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    It is hard sometimes, but I will go back and read Dr. Ameisen's book, and the various studies that show that it does work, and that helps me keep moving in the right direction. When I reached 180 mg, I noticed a significant decrease in cravings, although I had some high stress times that threw me back in the pit. Some severe side effects showed up around that time too. I now have to go up VERY slowly to keep the SEs under control. Just 5mg every 3 to 5 days. However my consumption is drastically reduced, and it's the only thing that has given me hope for a very long time. Hang in there. It seems like the longer you drank and the amount you drank has a correlation to your switch dose, so I probably have a ways to go . We'll get there though!

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  15. #10
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    Hey Danathos,
    Noticed you said you dropped 30mg in a day. That seems like a big dosage change for one day. Most people go up or down 5 to 10 mg at a time. Intervals range from somewhere around 3 days to much longer.

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