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    1. #11
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      Re: Baclofenman - My Story of Baclofen Two years in.

      Quote Originally Posted by dolphincat View Post
      Hi Bacman,
      Yes I have been prescribed these via LCAS with my GP's knowledge. Yes I am still drinking! First starting the meds, reduced my drinking mostly because I was tired and went to bed! Slept a lot better and had great spurts of being active initially. Not a social person, always drink at home alone.

      One nurse (although a brief consultation) believes I am a habitual drinker and not addictive? Too much to go into this theory, but got me thinking as I have never experienced severe side effects whilst de-toxing in the past.

      Best wishes,
      Dolphincat
      Hi There,

      I would expect that to prescribe you with Baclofen at a fairly substantial dosage the prescribers would (I assume) have some understanding of how Baclofen works, the responsibilities of the prescription and also the need to titrate to a high dose to effect the programme successfully? I think it is important to understand WHY they have prescribed this for you - If it is because you asked for it and they said "OK", then this is one thing - To have prescribed 90mg oral Baclofen daily it sounds to me like they have some idea of the method and structure of the program

      Has the provider mentioned that they may not want to increase your prescription further than 90mg oral Baclofen daily? You may or may not be aware that in France, prescribers are likely (or are i am not sure it is very up in the air at the mo) to have to restrict the maximum dosage to 100mg oral Baclofen daily

      Quote Originally Posted by dolphincat View Post
      One nurse (although a brief consultation) believes I am a habitual drinker and not addictive?
      Are you able to stop drinking ? No, I expect - Therefore as far as I am concerned you are drinking against your will, therefore it is an addiction - If you need more and more of something to achieve the same result (buzz) you are an addict - Whatever!

      So, to answer your question - It is my opinion it is most important to know your subject;

      What is Baclofen and how does it work in alcohol addiction.

      Baclofen Titration Schedule.

      Understand about the dangers of Baclofen through accidental misuse. Using the links at the top of this page you can familiarise yourself with trials and documents supporting high dose Baclofen.

      If you would like a copy of the original email I sent my GP, send me an email @ baclofenmanuk@gmail.com

      If I was in your shoes and wanted to continue with a Baclofen program? - i would certainly tickle their ego's a fraction, along the lines of

      "As you know I have been taking Baclofen for 2 or three months and this I am finding is certainly helping me as I am findings my cravings waning slightly. The Baclofen program requires a titration. I feel I am ready to go to the next stage as although i have had some of the typical side effects, I have managed these well so i would like you to support me further to a level of (say) 180mg oral Baclofen daily which I have read and had personal anecdotal reports I would expect to see some further improving results" - etc.

      Or the like.....

      Re Tapering - My GP is unaware I have tapered down - She will prescribe as long as I ask her to as the results are testament to her convictions. The simple reason I have not told her is because I do not want the discussion with her that I should swap Baclofen for an anti depressant for my anxiety which she has alluded to before

      Regards,



      Bacman
      Last edited by Baclofenman; January 15th, 2018 at 02:43 PM.
      I am not a Doctor - I am an alcoholic.
      Thoughts expressed here are my own, often poorly put together and littered with atrocious grammar and spelling.
      AF since 2nd January 2016.

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    3. #12
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      Re: Baclofenman - My Story of Baclofen Two years in.

      Quote Originally Posted by Baclofenman View Post
      My GP was so impressed she suggested she might try Baclofen on some of her other patients - I suggested this was not a good idea and have subsequently been criticised for this - I stand by this as although Balcofen will help people, their commitment to the programme cannot be guaranteed and after all, alcoholics are not the most reliable of patient by their very nature! The results to the patient following abuse are severe - For her to risk her reputation on an off label "cure", with the fuddy duddys of the GMC waiting to "bust her balls", is not a risk I would want her to take, on my say so - FWIW, I do think about this a lot....
      I hope your GP is still willing to accept your medical advice. If so please pass on this

      https://www.peertechz.com/articles/a...d-patients.pdf

    4. #13
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      Re: Baclofenman - My Story of Baclofen Two years in.

      Quote Originally Posted by Colin View Post
      I hope your GP is still willing to accept your medical advice. If so please pass on this

      https://www.peertechz.com/articles/a...d-patients.pdf
      I rather wish she would not!

      I have emailed this to her in the hope she may ignore my reservations and get prescribing - Maybe with all this information on one page (so to speak) she may be able to select suitable patients

      Regards,


      Bacman
      Last edited by Baclofenman; January 25th, 2018 at 02:19 PM.
      I am not a Doctor - I am an alcoholic.
      Thoughts expressed here are my own, often poorly put together and littered with atrocious grammar and spelling.
      AF since 2nd January 2016.

    5. #14
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      Re: Baclofenman - My Story of Baclofen Two years in.

      Dear Baclofenman,

      I have been taking back for 9 months now, getting up to 100mgs daily which I have cut down to 75 mgs. It was wonderful for my anxiety attacks, helped a bit with drinking. Could sometimes go a few days AF but then bing on 2-3 bottles of wine. My major problem, apart from lethargy is an awful cough, stuffy nose and sore eyes. Even worse incontinence. Do you think these side effects are likely to wear off? I so want to stick with this but it is very hard. Thank you.

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    7. #15
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      Re: Baclofenman - My Story of Baclofen Two years in.

      G'day Elizabeth

      I suffered from all the side effects you are experiencing - My experience was that these tend to improve as you go further along the path, however unfortunately this is the "reward" for your anxiety reduction - Do you find a reduction in your side effects between 75 and 100 mg?

      The issue as I see it is that my anxiety caused me to drink to feel fresh headed - The drink then caused me anxiety - Baclofen allowed me to drink (as it subdued my anxiety) to a point where I could make the decision to stop drinking altogether - It is a mind training thing, Baclofen does some of the work, I had to retrain my thought process for the rest

      One thing I do feel now is I have replaced the addiction of alcohol with the "addiction" of waking up in the morning with a clear fresh head rather than the hazy mess and finding myself knackered at midday!

      Obviously as you have found once you pop the cork you cannot stop - I and everyone on this site understand this - This is why (there certainly used to be) heated debate in the abstain V's moderation debate. I am (have to be) an abstainer however I have a massive respect for those who can successfully moderate - HA - I think this is because I know I cannot but wish I could!

      The only advice I can give you is to find something to take your mind off the booze after you have achieved a couple of days off - i watched soooo many series on TV with a coffee, sometimes when I was really going to burst I went to bed, sometimes at midday even! I got in my car and just drove and drove knowing that this would mean i could not drink, well I could but I am suitably respectful of the laws of the land! - I looked at my children and thought "what do they think of me", pissed, asleep, making stupid decisions and staggering around -

      The side effect went completely when I had reduced my intake to IIRC 30mg a day - I still pop a 30mg dose every now and again when I expect I may be pressured into taking a drink

      I do hope this helps you Elizabeth - Please keep with Baclofen, It does work.

      I am not sure where in Oz you are but if you have not visited Dr Amanda's site I recommend you do

      https://baclofentreatment.com

      Best regards



      Bacman
      I am not a Doctor - I am an alcoholic.
      Thoughts expressed here are my own, often poorly put together and littered with atrocious grammar and spelling.
      AF since 2nd January 2016.

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    9. #16
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      Re: Baclofenman - My Story of Baclofen Two years in.

      Thanks for your reply,

      I really appreciate it. I cut back from 100mgs to 75mgs as the coughing etc was keeping me awake nearly all night. The cough is a bit better and I am considering another slight increase now.
      Yesterday after 2 days AF I was climbing the walls for a drink. I don't drive and begged my husband to go and get me a bottle of wine. I had a beer in the meantime, guzzled the wine. Then blackout, apparently I went next door, they drink out on the balcony all afternoon and evening. I do vaguely recall walking round there.
      Landed up with them practically carrying me back 2 hours later, legless. I am mortified, God knows what I was saying? I have asked them but they are being tight lipped about it. They say I desperately need help. Several times over the last few weeks I have just conked out when drinking with baclofen.
      Can I ask you, how high did you need to go before you lost interest and could then reduce?
      Last night was full moon and it often triggers me to a binge.
      Also did the side effects wear off as you increased?

      I am beginning to think I will have to abstain or I will kill myself in the very near future. Last night I went to sit on the toilet and instead sat in the glass shower. This has happened twice.

      I am totally desperate now, I strongly dislike AA but am even considering going back there. I have my second appointment with my clinical psych in 2 hours and am in panic mode again.

      I love your attitude to your sobriety.
      Thanks so much for caring.

      Elizabeth

    10. #17
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      Re: Baclofenman - My Story of Baclofen Two years in.

      PS I am in Perth

    11. #18
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      Re: Baclofenman - My Story of Baclofen Two years in.

      Hello there,
      I have just reread your message again. I did have quite a definite drop in my anxiety between 75-100mgs.
      I am going to post a couple of updates below. Perhaps you can give me a bit of encouragement.
      Thank you.Elizabeth.

    12. #19
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      Re: Baclofenman - My Story of Baclofen Two years in.

      This and the following post have been copied and pasted from another forum HAMS WHICH HAS BEEN VERY SUPPORTIVE.

      #19
      04-06-2019, 01:16 AM
      I think I am making progress. Thank you for asking.Managed 5 days AF last week, due to guilt, mortification and increasing baclofen to 100 mgs per day.
      Then busted last night after just 3 days. As soon as I start that is it. 3 bottles of wine later.......
      My daughter in England has said we can stay when we are over in 5 weeks time, bless her. We will be visiting and staying with others, I so want this to work.
      My daughter here is pushing me away, self preservation. I get it as the same happened to me and my Mother. Very hard to just sit, wait, hope, not make false promises.
      I have mixed feelings about increasing my baclofen. Every time I do, I get this God awful cough which leads to incontinence. Although since my increase last Sunday is beginning to wear off.
      The great thing is the dramatic reduction in my anxiety and possibly managing to go more than alternate days AF. But that could be pure fear?
      My clinical psychiologist who I met for the second time last week. Concluded, after my online questionnaire of 173 questions! Some which were seriously bizarre. Was my main problem is anxiety due to childhood and then later difficulties.
      He did say I must not dwell on the past. He noted the baclofen was helping my anxiety. He did say very few of his patients over the years have managed controlled drinking. However he also stated he would not ask me to stop.
      He asked me a very strange question which was "If I ask you to do something will you agree" Mmm that set a few alarm bells ringing but I said yes. He then asked me to visualise a white bear, which I did. Then he said dont think about it. It was quite difficult. The night before my appointment he asked me to not drink. The cravings were insane and I gave in, he says that is because I am thinking about it too much. I must tell myself I am no longer a drinker. If I slip it is not the end of the world. interesting?
      I have been trying to put this into practice.
      I have it in my head now, that unless I quit, for sure I will be dead in a couple of years as I have had so many dangerous falls etc and my 9 lives are running out.
      Thank you all for your wonderful support and I hope your road gets a bit smoother.

    13. #20
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      Re: Baclofenman - My Story of Baclofen Two years in.

      #20
      Today, 08:37 PM
      Dilemma over dose. I increased to 125 mgs after waiting 8 days. Seem to have gone back to drinking/bingeing alternate days. On the positive side anxiety attacks have now practically gone. However the cough and incontinence have got worse and apart from feeling really spun out and dozy again, I am unable to really function much at all. I did email Dr Amanda Stafford at Perth Royal Hospital about my concerns regarding trying to get up to 150 mgs and hoping that the side effects will dampen down and hopefully I may reach the magic "trigger". She has a great interest in baclofen for addictions and has written many observations which you can google.
      She once again very kindly replied and said that in her opinion if I can fight through the side effects it is worth still increasing the dose. She is very kind and helpful, she has her email address on her page and considering I am not even a patient of hers, I really appreciated her reply.
      But yesterday I was so wobbly and confused and am frightened to increase to 125 mgs on Monday which will be a week since the last increase.I have read so much about baclofen for AUD and naturally a lot of it is conflicting advice as everyone is different.
      Is there anyone who has been through this experience who could perhaps share their own journey please.
      I would be really grateful as I truly believe this is my last option to try and I so need this to work.
      Hoping life is being kind to you all through this difficult but worthwhile journey.

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