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  1. #11
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    Re: Need to make contact with others using baclofen

    My experience is very similar to yours. I've had intermittent migraine ever since I was 10 years old. Amongst all the other symptoms was a fierce headache which knocked me out for 24 hours or so. The frequency of attacks was initially about once every 2 weeks which slowly extended with age. When I was about 40 the intensity of the headaches began to decrease until I now have occasional attacks with no headaches. The auras and numbness are the only reminders that it is migraine.
    I vividly remember an occasion when I told a friend that a migraine was beginning to which he asked if I had ever had migraine when I was drinking and after some thought I said no. Ever since, whenever I felt a migraine starting I reached for the bottle and it seemed to help.
    Your migraines might be caused by your sobriety and not by baclofen!

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  3. #12
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    Re: Need to make contact with others using baclofen

    Quote Originally Posted by Colin View Post
    My experience is very similar to yours. I've had intermittent migraine ever since I was 10 years old. Amongst all the other symptoms was a fierce headache which knocked me out for 24 hours or so. The frequency of attacks was initially about once every 2 weeks which slowly extended with age. When I was about 40 the intensity of the headaches began to decrease until I now have occasional attacks with no headaches. The auras and numbness are the only reminders that it is migraine.
    I vividly remember an occasion when I told a friend that a migraine was beginning to which he asked if I had ever had migraine when I was drinking and after some thought I said no. Ever since, whenever I felt a migraine starting I reached for the bottle and it seemed to help.
    Your migraines might be caused by your sobriety and not by baclofen!
    Thank you @Colin for your reply.

    I wish it was my lack of drinking that could be the cause, that would make a little sense to me. I am still drinking although considerably less in recent days than I was before.

    I am on 230mg. a day at the moment and now believe the event had nothing to do with baclofen, which was my doctors initial fear. I was on 210mg. a day when this happened. Personally I suspect it may have been a little more dire than was recognised.

    The good news is I am on 230mg. and continue to be titrating up. I have some weird side effects such as a feeling that keeps me up at night which feels a little like withdrawal except it is only in certain places. When I say that I mean a feeling of having bugs under my skin. I have battled many addictions and have withdrawn from a variety of substances, it's the only way I can describe it other than drawing a comparison with restless legs, which I have also endured due to medication. Other than that I can't complain, I am a little tired as this tends to happen through the night.

    My drinking is becoming considerably less, I just don't seem to be able to consume the amounts I have previously very easily. Onward and upward to achieve indifference.

    To anyone who is on a similar path, I'd love to hear from you as I feel a little like there aren't many out there to bounce off on this topic.

    Have a great day or night wherever on this rock you may be.

  4. #13
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    Re: Need to make contact with others using baclofen

    Quick update on where I am on this baclofen journey.

    I feel it is pretty safe to assume traffic on the medication section of MWO is much less than it was when I was here years ago, it was thinning out then too compared to the years previous to my arrival. I certainly feel like I am doing this on my lonesome this time.

    I am on 245mg a day at the moment and my drinking has changed dramatically, I used to look forward to getting home to have a beer and I would have one in my hand very shortly after walking through the door. Lately I have noticed I spend time doing other tasks and pottering around before I crack a beer, and when I do I don't really seem to be excited about it at all. It is more like I am doing it due to a habit which had been well formed over many years.

    If anyone comes across this post who has switched, I am wondering if this is what it was like for them?

    I am still drinking yet nowhere near as much as I had been previously, and I seem to be becoming nauseous as I reach about seven beers. Can anyone shine a bit of light on the nausea, and is this part of the process?

    Last time I did this, I only went to 130mg a day and that appeared to be all I needed to stop drinking, 130mg a day did nothing for me at all this time.

    Thanks in advance, if someone replies.

    Cheers Steve.
    Last edited by Stevo; August 12th, 2021 at 02:53 AM.

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  6. #14
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    Re: Need to make contact with others using baclofen

    Another quick update on this baclofen journey.

    I am now on 275mg a day, my drinking is starting later in the day and I have been having a cup of tea in the afternoon instead of going straight for a beer. It is all made a little harder as we are in lockdown here and the days can be a little boring, having a beer earlier would be an easy way to kill some time. That being said, I just don't want one.

    I am still averaging about 8 beers a night, I usually tip the last one down the sink after a few sips. My SE's seem to have settled and I am sleeping well through the night with the help of Phenergan.

    Funny story, the other day I was in the chemist getting my baclofen script filled when the pharmacist came to speak with me concerned I was refilling scripts faster than I should be. I quickly explained what I was doing but as there were other people around I said for addiction and not AUD, he asked if my doctor was aware? I informed him he was. As I left I spoke briefly with him in a bit more of a private manner, but only very briefly saying I have been waiting for you to say something. Fast forward to a couple of days later, I am back in there getting Phenergan and one of the assistants makes a point of asking the pharmacist if it was okay to sell these to me? He nods, I walk out and start thinking to myself I told the pharmacist I have a problem with addiction, this could mean anything. I start to get worried the pharmacist is going to be watching everything I do like a hawk, so I went back in yesterday and asked to speak with him privately. He takes me to a room out the back and I got an opportunity to explain to him exactly what I meant by addiction. He says he has spoken to my doctor and is happy to continue as we have been. Phew! I asked him if he knew anything about HDB to which he replies no. I then proceed to teach him about what it does and why I am doing it. I made it very clear I was not getting high or abusing any pharmaceuticals and I would appreciate if I wasn't scutinised every time I have to come in for filling of prescriptions and anything else, I am on several medications for other health issues. I let him know the high dose I am on is not going to be forever yet I may continue to go higher for some time to come, I assured him I am titrating up responsibly and I will at some time in the future do the same down to a maintenance dose. The worst thing that could happen right now would be to cut me off as I would go in to withdrawals. He seemed very interested and reassured me he would continue filling my scripts. I thanked him for his time and he thanked me for being up front with him, I left.

    It worried me terribly I was going to be cut off just as I am really beginning to see the transformation happen in my life again. I told my pdoc and my doctor they only see me once a week but I am living through the life changing effects of baclofen, they both smiled when I told them I was having a cup of tea in the afternoon instead of a beer. I was talking with my partner about this later that night, she doesn't live with me but we talk every night. She lives 200 km's away in another state and she said you know you are not the only person seeing it, I have been there with you too. I hadn't thought of this and it was nice to realise, when we met I was still drinking at least 16 beers a night, if not more.

    Anyway, this journey has been different for me as I have had to go much higher than last time. It worried my doctor and pdoc, and me a bit. I have scoured the forum for switch stories but it is hard as there are so many posts and some are so long. I am still interested in communicating with others on the same path and if anyone can send me straight to detailed descriptions of other peoples switch stories that would be much appreciated.

    This has been much longer than I had expected and I think I have more to say, but won't for now.

    Cheers Steve.

  7. #15
    Registered User. Mulburry's Avatar

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    Re: Need to make contact with others using baclofen

    @Stevo I'm going a totally different route, but it's always interesting to hear other peoples experiences with meds / cutting down /quitting etc. so thanks for sharing!

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  9. #16
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    Re: Need to make contact with others using baclofen

    @Mulburry I have enjoyed reading your posts too. It seems we are the only two people posting, I check back regularly to see if anyone has commented on my thread and consistently see nothing. Your posts are the only deviation from mine and always have a look.

    I think Gabapentin works on a different GABA receptor, I do recall people doing it years ago on here. Traditional approaches such as 12 step fellowships have never been a good fit for me and many I suspect. I used to be a part of them and was a willing advocate until my best friend killed himself at 8 years sober. I had been close to 3 other suicides in the 6 months prior, it caused me to start asking questions about the program and I had found and read Dr. Ameisen's book around the same time beginning my first journey on Baclofen. I found it interesting you felt stoned for lack of a better term on Gabapentin.

    Another funny little story.

    I ran into an AA member a few weeks ago, who I am still friendly with. There are a few I still chat with but many would not give me the time of day these days. When I turned my back on the fellowship a campaign of ostracising me took place, people were told to stay away from me as I would drag them back into active alcoholism, I only know this as certain people I was close to at the time were telling me. Anyway I came across this guy and he had a new girlfriend who I can only assume was a newcomer to the fellowship, he has now been sober for many years and is heavily indoctrinated. He says with a hyperbolic arrogance found amongst older sober members "there is only one way to stay sober." I suspect he said this for several reasons, one being to impress his new girlfriend. AA openly mocks medical approaches where I live. She looked proud at her choice in men and her journey into what she thought was the only way to remain sober. My response was to remind him AA was not the only way, there were other ways which AA would never promote as it does not fit their narrative. He knew exactly what I meant yet the arrogance of the older sober members is a fragile house of cards that requires strict adherence to cultural norms, especially when beginning to indoctrinate new members. They must be seen as something to aspire to, they love telling people how long they have been sober, it is a badge of honor worn very proudly yet can be sinister in its intent. He knows Baclofen has worked for me before and couldn't get out of my immediate vicinity quick enough.

    I'm sure when I stopped taking Baclofen a few years ago, they would have relished that I was back drinking again, this is how sick a lot of older sober members still are. What they don't know is I made a conscious decision to stop taking Baclofen as I had been through some terrible changes in my life and had decided in the midst of a deep depression to try to drink myself to death, I know it sounds silly but I was determined to follow through. Alas drinking oneself to death is much harder than one would think. I ran into another old friend from AA after I had been in hospital recently in a supermarket, she asked about it and before I could begin to explain she implied it must have something to do with my alcohol beaten liver. It was not, and I couldn't help myself. I smiled and told her I thought it was amusing an older sober member of AA would immediately assume my health issues were directly related to alcoholism, she is a good woman but wow did she backpedal and try to get away from me as fast as she could. It is true I could have health issues from a hard life of drinking, I have certainly done a lot of it. The truth though is my kidneys, liver and pancreas are all functioning normally, it is a bit of a miracle but it is what it is. Once again the default arrogance of the older sober members bubbles through to reveal itself, even whilst proclaiming gratitude, serenity and an open mind. I know they believe their lives depend on it but this is just another aspect of the indoctrination process of 12 step fellowships. The similarities to a cult are very interesting, even if they have very well worn reasonings as to why they are not a cult.

    I am now on 290mg a day and have only drank 7 beers over the last couple of nights with most of the 7th being tipped down the sink, I suspect I will be going higher but with the changes I am seeing it won't be too much longer before I can say I have hit the switch and start thinking about finding a maintenance dose.

    Cheers Steve.

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  11. #17
    Registered User. Mulburry's Avatar

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    Re: Need to make contact with others using baclofen

    I think Gabapentin works on a different GABA receptor, I do recall people doing it years ago on here
    Ya it works directly on calcium channels IIRC. The thing though is, from what I've read, it also has a fairly high dependence profile and can even cause withdrawal seizures, so it's something I probably would have only wanted to use for a few days or a week anyways. I have a really sensitive brain so I'm very wary of staying on anything too long (even trazodone etc.).

    and had decided in the midst of a deep depression to try to drink myself to death, I know it sounds silly but I was determined to follow through.
    I can relate to this, whenever medical people have (cautiously) brought up the issue of suicide I always tell them: while sure I've thought about it, I'd be much more likely to do it slowly by drinking myself to death rather than jumping off a bridge. Unfortunately my liver especially (luckily not yet irreversible) and kidneys have taken some damage; and I do have the feeling if I would continue like this into my 40's my health would probably seriously start to decline.

    Traditional approaches such as 12 step fellowships have never been a good fit for me and many I suspect.
    Ya, I mean if it works for some people great for them, but I wouldn't touch AA with a 10 foot pole. What you wrote pretty much confirms what I've heard about it. Aside from the cultish aspects (thumbs down) the idea of sitting in a room with a bunch of strangers in person and having to talk (I have pretty bad social anxiety) would probably make me want to drink more than anything. They actually have a some more modern alternative to AA group type programs here but I just prefer to get support from friends and family (which has been great) and online (from great peeps like all of you!).
    Last edited by Mulburry; September 30th, 2021 at 12:16 PM.

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  13. #18
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    Re: Need to make contact with others using baclofen

    As of today I am on 300mg a day, I grabbed my first beer about 1630 yesterday afternoon and realised after I had cracked it day light savings had started here today. I was a little disappointed to realise I had actually cracked a beer earlier than I had in the last couple of months. If it hadn't have become day light savings time it would have been 1530 in the afternoon. It won't get me today.

    @Mulburry I don't know much about Gabapentin, but think I recall reading it works on the GABA A receptor, don't quote me on that and I know it has helped other people. Baclofen engenders a dependence too, if I was to lose my supply right now I would go into some pretty nasty withdrawals from what I have read about it. It is part of the reason I spoke with the pharmacist to let him know I was not getting high or abusing Baclofen for fun.

    I used to work with people with Acquired Brain Injuries, ABI's. One of our clients had a Baclofen pump and his supply was replenished every 3 months or so. His ABI was global, a hypoxic injury from an asthma attack. We had some challenging situations with management and new inexperienced staff which caused for his supply to run out, it came to light once he got to see his doctor. I was close to this mans family and was a key worker for him, I was terribly alarmed to learn through negligence of management and documentation of green staff this poor man was left to be in Baclofen withdrawal for days. He was non verbal and couldn't tell us what he was feeling, I have not thought about that in nearly 10 years and feel a little sad as I reflect on it now.
    Last edited by Stevo; October 3rd, 2021 at 08:33 PM.

  14. #19
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    Re: Need to make contact with others using baclofen

    I was terribly alarmed to learn through negligence of management and documentation of green staff this poor man was left to be in Baclofen withdrawal for days. He was non verbal and couldn't tell us what he was feeling, I have not thought about that in nearly 10 years and feel a little sad as I reflect on it now.
    Yikes, that sounds horrible, poor guy.

    I have a bit of a fear (irrational I'm sure) of something like that happening, being dependent on some medication and then not being able to get it anymore for some reason (not to mention the idea of having to go through a whole nother withdrawal process at some point even if regimented tappered).
    Last edited by Mulburry; October 7th, 2021 at 01:18 AM.

  15. #20
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    Re: Need to make contact with others using baclofen

    @Mulburry I hold those same fears, I don't think they are irrational.

    I haven't had anything to say for a week or so, but today was interesting to say the least.

    Today I saw my GP to get a new prescription for bac. He has come to the conclusion any neurological issues I am having since the episode/event which is still undiagnosed is the outcome of me taking bac. He has withdrawn his support for me to do this and has given me one prescription with 5 repeats and made it clear I won't be getting another one.

    I am on 300mg a day and have to begin titrating down immediately. He said a few things leaving me to believe he didn't like getting the phone call from the pharmacist and wanting to retire on his own terms. He couldn't let me keep going and have something terrible happen to me because he is facilitating it, which I completely understand and respect.

    This drug has been transformative in my life, and I was hoping to switch before any of these issues arose. It seems that may not happen now.

    I don't want to stop. I am so close to seeing the process to fruition for a second time. That being said, I am on a much higher dose than I was last time and I have become a liability. My desires should not jeopardise the lives of others, even though it may be important to me.

    Does anyone know of a reliable online pharmacy? I have seen some recent posts saying the one I used to know of is having issues.

    I feel like I was approaching the light at the end of a very long tunnel and have been pulled back to the start of the tunnel again.
    Last edited by Stevo; October 11th, 2021 at 05:48 PM.

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