Tutankhamun has left his pyramid

[Tutankhamun]

Tutankhamun has left his pyramid

Over the last 4 or 5 days I've gone up to 20mg 3 times a day.
Still a small dose.
This is the maddest thing I've ever experienced. I don't want a drink, but I feel drunk.
My feet dion't feel like they reach the floor. And I've got very short legs! Maybe that's why they don't reach now! Perhaps I should drop my bottom more. Who knows?
I've not had any alcohol for four days. And that is definitely getting easier. Remarkably so. But I feel that I'm just replacing one thing with another.
Tell me I'm wrong.

[betty boop]

Tutankhamun has left his pyramid

Tutankhamun;941734 wrote: Over the last 4 or 5 days I've gone up to 20mg 3 times a day.
This is the maddest thing I've ever experienced. I don't want a drink, but I feel drunk.
My feet dion't feel like they reach the floor. And I've got very short legs! Maybe that's why!
I've not had any alcohol for four days. And that is definitely getting easier. But I feel that I'm just replacing one thing with another.
Tell me I'm wrong.

You are wrong!!!!!!

Baclofen is very good and not dangerous or addictive ..............

and 4 days AF is just brilliant!!!!

[Chillgirl]

Tutankhamun has left his pyramid

Hi Tut
You would be better to go on to the meds threads and ask there. There are so many different experiences with bac both good and bad.

I quit cold turkey, I didnt like the idea of substituting my addiction for drugs. I wanted to go through the crap and have it over with but we are all different and your addiction maybe much deeper seated than mine. At least they are working, in that you havent drank in four days....

[Tutankhamun]

Tutankhamun has left his pyramid

betty boop;941738 wrote: You are wrong!!!!!!

Baclofen is very good and not dangerous or addictive ..............

and 4 days AF is just brilliant!!!!

Thank you Betty
I've spoken to Dr Phill and he has assured me that Baclofen is not dangerous or addictive and that I should expect some weird stuff to start with.
But, I jjust don't feel like me.
Is that niormal?

[Tutankhamun]

Tutankhamun has left his pyramid

Chillgirl;941739 wrote: Hi Tut
You would be better to go on to the meds threads and ask there. There are so many different experiences with bac both good and bad.

I quit cold turkey, I didnt like the idea of substituting my addiction for drugs. I wanted to go through the crap and have it over with but we are all different and your addiction maybe much deeper seated than mine. At least they are working, in that you havent drank in four days....

At the moment, drink would be easier. I have never taken 'serious drugs' but this is what I imagine it to be like. I've got mad visual things. My right arm doesn't work, and I don't quite know where the floor is. And I feel like my head is full of wool. I'm doing my very best with this message, and to be honest, a friend of mine is typing it for me.

[Chillgirl]

Tutankhamun has left his pyramid

Tut Im so sorry you are feeling so bad... can you cut back down on the amount? Im sorry I have no experience to help you with this

[Tutankhamun]

Tutankhamun has left his pyramid

Chillgirl;941751 wrote: Tut Im so sorry you are feeling so bad... can you cut back down on the amount? Im sorry I have no experience to help you with this

My friend is going to contact Phill. This is too much.

[Chillgirl]

Tutankhamun has left his pyramid

Tut do you want to go into chat? If you are up to it I can try and distract you from how you are feeling.....

[Tabbers (a.k.a. KTAB)]

Tutankhamun has left his pyramid

Tut I havent taken meds so cant really say, but that doesnt sound right. Posting on the meds thread as Chilli suggested is a good idea.

[Pride before Fall]

Tutankhamun has left his pyramid

Dr Phill has assured me that Baclofen is not dangerous >>

Tut, 60 mg baclofen is clearly neurotoxic for you. Of the many tools people use to help them stop drinking,

* when you can't feel your arm
* you can't feel the floor
* you are hallucinating, and
* you need someone else to type for you,

odds are off-label use of a muscle relaxant for spasticity is not the one for you.

I can't tell you what to do, but if you decide you've had enough of this experiment and do stop taking bac, taper off VERY VERY gradually--it can be fatal if discontinued abruptly.

I don't know Dr. Phill's motives for posting, and if he has helped people here who are struggling, I'm glad. Personally, I found his threads to be more like data gathering devices than advice and support. It also worries me that his experiment with baclofen self-medication began at the end of 2009?8-9 months is not a great amount of time to prove efficacy. Not sure how I feel about the pay-as-you-go "personal montoring and support service" he offers, either. He lost his license to practice cosmetic surgery and law, and we don?t really know the reasons for either.

Regardless how I feel about his advice, from his own blog (in addition to saying "this site is not about providing individual medical advice"--cf. 'not dangerous' advice above): "When you first start taking Baclofen, you will almost certainly notice what is often called somnolence. This merely means a feeling of tiredness/drowsiness. You will probably feel a little dizzy on occasions, especially if you stand up too quickly. You may notice a bit of tingling or numbness in your hands and / or feet, and the occasional twitching of your muscles. All of these will fade away, probably totally, within a few days."

This is not what you are experiencing. Please go with your own symptoms rather than the subjective assurances and experiences of people here, or Dr. Phill, regardless of how well-intentioned they are. As desperate as you (and all of us) are for a magic bullet, killing yourself in the quest is not recommended.

End of soap box, but I?m going to be checking in again until you can hold a pen in your right hand again and get on with your book.

THAT is living.

Pride

[Tutankhamun]

Tutankhamun has left his pyramid

Pride before Fall;941811 wrote: Dr Phill has assured me that Baclofen is not dangerous >>

Tut, 60 mg baclofen is clearly neurotoxic for you. Of the many tools people use to help them stop drinking,

* when you can't feel your arm
* you can't feel the floor
* you are hallucinating, and
* you need someone else to type for you,

odds are off-label use of a muscle relaxant for spasticity is not the one for you.

I can't tell you what to do, but if you decide you've had enough of this experiment and do stop taking bac, taper off VERY VERY gradually--it can be fatal if discontinued abruptly.

I don't know Dr. Phill's motives for posting, and if he has helped people here who are struggling, I'm glad. Personally, I found his threads to be more like data gathering devices than advice and support. It also worries me that his experiment with baclofen self-medication began at the end of 2009?8-9 months is not a great amount of time to prove efficacy. Not sure how I feel about the pay-as-you-go "personal montoring and support service" he offers, either. He lost his license to practice cosmetic surgery and law, and we don?t really know the reasons for either.

Regardless how I feel about his advice, from his own blog (in addition to saying "this site is not about providing individual medical advice"--cf. 'not dangerous' advice above): "When you first start taking Baclofen, you will almost certainly notice what is often called somnolence. This merely means a feeling of tiredness/drowsiness. You will probably feel a little dizzy on occasions, especially if you stand up too quickly. You may notice a bit of tingling or numbness in your hands and / or feet, and the occasional twitching of your muscles. All of these will fade away, probably totally, within a few days."

This is not what you are experiencing. Please go with your own symptoms rather than the subjective assurances and experiences of people here, or Dr. Phill, regardless of how well-intentioned they are. As desperate as you (and all of us) are for a magic bullet, killing yourself in the quest is not recommended.

End of soap box, but I?m going to be checking in again until you can hold a pen in your right hand again and get on with your book.

THAT is living.

Pride

Thank you.

I've had my emergency doctor out and he was amazing. He isn't part of my GP practice, but he knew about Baclofen. He was a junior hospital pschiatrist just making extra money. He sepnt ages with us. Looking through web sites and listening.
He thinks that we are trying to do is probably for the best.
This isn't neurotoxicity. It's just what happens. That's what he thinks.
I don't know what your problem is with Dr Phill.
Every time we ask him anything, he replies.
It isn't working great, but I still believe in it.
Even the doctor tonight thought it was still worth doing.
He wanted to prescribe me a beta blocker for a few days. I've said yes.

[tiptronic_ct]

Tutankhamun has left his pyramid

Posting about your symptoms and progress on the meds threads will bring you in direct contact with many of us who have been and / or still are on baclofen.

Just a thought.

Good luck - I really hope you win this battle. Hang in there - it is worth the effort.

[Tutankhamun]

Tutankhamun has left his pyramid

Hi all
That beta blocker was an act of genius. I've always been chronically anxious, and as my side effects got worse so did my sense of lack of control and fear.
The beta blocker has helped enormously.
I've still got most of the symptoms, but they are so much less severe it's untrue.
Phew, what a relief!
I'm going to stay at this dose of Baclofen for a while now, and shall probably continue with the beta blocker forever.
Craving a glass of wine right now, but will stop myself. There's none in the house, so I would have to go out and I really don't feel up to that yet.
I'm going to contact that young psychiatrist to thank him.

[betty boop]

Tutankhamun has left his pyramid

Tut, thanks for keeping us posted ..........

I'm so glad that you are feeling better ............ it will be worth it if it gets you AF I promise .............

Love & Hugs, BB xx

[Pride before Fall]

Tutankhamun has left his pyramid

I'm so relieved you saw a doctor for your SEs. Not even the MWO poster who was taking 400 mg had symptoms like yours. Can you get a baclofen script through the ER doctor now? That would at least rule out impurities in the mail-order stuff. Also, I’m assuming you had a physical and he took a medical history, and you can relax that the SEs weren’t related to another problem that interacts with baclofen, like kidney function.

I sing and act, despite raging performance anxiety (not as a form of self-torture, but as immersion therapy, though not sure if there's much of a difference), and swear by beta-blockers for ratcheting down panic. If it works (and doesn’t hurt you), stick with it.

Re. Dr. Phill, I'm equally puzzled by the acceptance of his baclofen expertise and purpose for posting by some here as others are by the problems some of us have with him. I’ve looked at his site, watched his video logs, and read his Wikipedia and Serving History promotions, and I’m afraid I’ll have to remain in the latter group. Not because of a chip on my shoulder about him particularly, but because I care about people here.

So happy and relieved you’re feeling better and have support v. how isolated you were!

Pride